This week has been so weary-ing. On the New Year's weekend our family moved my neighbor from her 5 bedroom house to a tiny trailer. I have yet to recover physically from that! I have struggled to get out of bed and get moving in the mornings. I am totally fatigued. (Which doesn't help me fight against E.D.)
But I've done pretty well. I think it helps that I haven't gone grocery shopping in awhile and have run out of quick fixes (like cereal and toast). If I want to eat something this week I have to COOK it. And that's just not me. So, I've had less trouble with those late night invitations from E.D. to raid the fridge. (:
Thank God for small mercies!
Today we had an appointment in Calgary with a psychologist ... trying to find answers as to why our daughter behaves the way she does (tantrums, fear, insomnia, social awkwardness, hyper sense of sound, light, touch and taste.... the list goes on and on. I am at my wits end trying to deal with her and am looking for some sort of diagnosis so I can start moving in a helpful direction. Right now, this stress is probably my main threat to recovery. It takes so much energy to handle what Journey throws at me that I have little to nothing left over for my own care or that of the rest of my family. Garron and I will meet with the psychologist again next week (this time without Journey) and hopefully after that session we will be able to convince him that we need her assessed for Autism Spectrum disorders.
Those of you who know my Journey may be wondering what I'm talking about as she seems quite normal to you...yes, that is one of my primary points of confusion too.
She is a totally different person at home or alone with us than she is out in public. She spends all her energy trying to appear 'normal' when at school or out in public and just EXPLODES when she gets home to her 'safe place'. I could really use your prayers. For wisdom, insight, patience, strength, consistency, diligence, and answers!!! And if that isn't enough you can also pray that I find the right combination of doctors, psychologists, mental health professionals etc. I would very much like to find someone personable, gentle, straight foward, proactive, knowledgeable, and kind. "?" I know that with man this is impossible ... but with God, ALL things are possible!
I'm tired. think I'll try to sleep.
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Praying for you.
ReplyDeleteHi, I know you vaguely from when my hubby worked with yours. I love your blog and I can tell u I went through the exact same thing. The spychologist at PCA referred me and after a year long process of forms and referrels we recieved last month a diagnosis of Asperger's syndrome and Anxiety disorder. Your daughter sounds exactly like my son. Would you like to borrow my book Aspergers by Tony Attwood? I read it before the diagnosis- it was recommended by the psychologist as the best book on Aspergers he said to read it to see if it fits. It was so confirming!!! And such a relief. The movies ' Temple Grandin' and 'Adam' also helped me push for a diagnosis. I would love to watch these with you and talk. Please feel free to call me- my husband is Philip and he used to work at the same company. My email is pcewert@telus.net.
ReplyDeleteThese might help you in the meant time,
http://acquiringbalance.blogspot.com/search/label/Dealing%20with%20A%20Diagnosis
I would love to talk to you ASAP. Tomorrow night even works. I just remember feeling so alone and I would like to help that for someone else:)